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Goodbye To Compass

This morning we had our final meeting with Sheila, our Compass counsellor. Since that first meeting, when I was still so withdrawn and suspicious of strangers, it hasn’t really felt like counselling at...

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An Overview Of 2012

Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has been online, in a...

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Epilepsy And Fitness – Resolutions For 2013

Usually I don’t make resolutions, partly on account of my health and also because I forget what the resolution was in the first place, but this year I am very clear on what I need to focus on...

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Autism: I’m Not Crazy, But Sometimes My Brain Skips A Beat

Appearances can be deceptive. Outwardly, to the bystander, I’m the smiling, friendly blonde lady who is confident in herself and still retains an appearance of youthfulness and some of the good looks...

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Sexuality And Disability

In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide...

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Epilepsy, Disability And Idiocy

“MOVE IT!” I had just hobbled off the coach, en route to my home town to visit with my son. London Victoria is where I had to change to a different coach, and I was looking forward to the two-hour...

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“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”

That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to a...

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How I Saved A Life

Disclaimer: This piece is not about blowing my own trumpet. I am writing this to prove a point – that people with disabilities can still make an important contribution to society. Colin Brewer,...

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The Ultimate Devotion

I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D,...

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The Fall Of An Epileptic

Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their...

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Turning Japanese And Cross-Stitch Flowers

I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to sleep on my left...

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Epilepsy and Blogging

Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have...

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Growing Up Aged Thirty Nine And A Half

Growing up is something that I tried to avoid for all of my life until now. I inherited Romani blood which runs hot in my veins; I am an autumn child who has spent many years floating free with no...

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Stubborn

Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a...

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Autistic Son Psyched In A Bad Way

Psych Unit I have mentioned my autistic son many times before. I’ve shared the good times, the bad times, some photographs of my handsome, cheeky little man. A young man who is basically thoughtful,...

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Baby Love

Google Image In a small maternity delivery room in Cheltenham, long ago, an exhausted young woman lay in a bed soaked with blood, sweat, amniotic fluid and tears; she had in her arms the most precious...

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Wheelchair

I can walk; I can even jog a little, and dance in short bursts. I can get to the local shops and back and sometimes I don’t even need my walking stick. What I cannot do, however, is have days out,...

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Frank La Rocca, Epilepsy Nurse

This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a...

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“You Should Get A Job…”

“… And then you’d be getting paid for something worthwhile complaining about.” I looked at her; a pretty woman with blonde hair, a stinky attitude and a smug expression on her face. I stand some inches...

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Staring Without Seeing, And Other Stories

That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted...

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